Thursday, July 25, 2013

Deep Water Ahead...

15 July 2013

Dear Family,

I wanted to let you know what we have learned so far from the medical appointments today.

The appointments were related to the lump under my left jaw that has developed over a period of several weeks.  When the small lump first appeared it was very tender.  We went to the walk in clinic and it was diagnosed as a blocked salivary gland with infection.  I was told to eat lemon drops to stimulate secretion.  Supposedly that would move the blockage and allow the saliva to drain.  An antibiotic was prescribed for the inflammation.  In time the tenderness disappeared, but the lump did not. 

After a time the lump enlarged slowly.  Then over a period of 48 hours the lump mushroomed to golf ball in size.  While visiting my doctor who tracks my blood counts related to myelofibrosis, we asked him to examine the lump.  He ordered a PET scan.  The PET scan identified the enlarged tissue as a lymph node.  From the follow up with the doctor related to the PET scan, a tissue biopsy was ordered.  Today's appointment was to receive the biopsy results. 

At this point the doctors are quite certain of a diagnosis of lymphoma, cancer of the lymph nodes.  There are various types.  They think this is most likely large cell lymphoma.  I will be having another PET scan with contrast dye that is attracted to the lymphatic tissue to evaluate how pervasive or widespread the lymphoma is.  Already I can feel other lymph nodes that have begun to enlarge.  The doctors also want another CT scan to help confirm the diagnosis. Also it will be necessary to do a bone marrow biopsy to see if the lymphoma is spread there.  These procedures will allow the doctors to stage the cancer, or in other words determine how advanced it already is. 

The usual treatment for lymphoma is chemotherapy.  However, the condition of my blood cells related to myelofibrosis complicates this process.  A treatment plan will have to be determined that my blood cells can best tolerate. 

Lymphoma is one of the most common cancers in the elderly.

So that's pretty much what we know medically speaking.

We feel like we were brought to Kenosha in order that we might benefit from the amazing medical care that is available here.  We use the Aurora Medical Center.  It consists of excellent medical doctors from almost every specialty.  We appreciate Dr. Gregg Rocco, our primary care physician.  My main cancer doctor is Malik Bandealy.  He and his associates are rated in the top 1% of general oncologists.  One of the good things is that referrals and procedures happen almost immediately and is all within one system.  Long delays are avoided.  We feel very blessed to have their assistance.

While it appears we may be swimming in the deep end, we are not without hope.  We know Heavenly Father's hand is in His work.  While we are instruments in his work as missionaries, we are also part of His work.  We know His hand will be over us as we move forward.  We have no plans at this time to request any changes in our assignment.  Our mission president expressed his wholehearted support in dealing with whatever health challenges we might have when we were interviewed by him last week.  We will continue to take things one step at a time, trusting in the Lord to take us where we need to go.  It well be another learning experience for us, for all of us. 

One of the great strengths we are blessed with is our family.  We are so very grateful for each one of you, for your love for the Savior, and your faith in Heavenly Father's plan.  We teach it to people every day.  We better believe it ourselves.  I know each of you does.  We certainly do believe it!  We are grateful for your continuing love and support, for your faith and prayers in our behalf.  We have swum in the deep water before and grew from it.  Although we wouldn't choose to do it again, there seems to be a divine purpose in our having the opportunity.  We accept it and will do our very best.  We feel there is still work for us to do.  If there is, He will provide the way.  What more can I say.  If there isn't, then we are okay with that as well.

 
Thank you so much for sustaining us wherever this may take us. 

Love to each of you.

Dad Skinner / Charles & Mom Skinner / Vicki

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